Real life stories
Real life stories
Pauline’s executive dysfunction story: “COVID left me isolated: The Brain Charity welcomed me with open arms”
Pauline has Alice in Wonderland Syndrome, an extremely rare illness which can cause parts of
Category: COVID-19
Published: 28 April 2022
Lindsey’s MS story: “Diagnosis was like falling into a hole – The Brain Charity’s help was life-changing”
Lindsey was diagnosed with MS in October 2020.
Category: COVID-19
Published: 21 September 2021
Graham’s brain haemorrhage story: “I went from working in intensive care to being there myself”
Graham, 58, started his career as a pharmacist at The Walton Centre.
Category: COVID-19
Published: 31 August 2021
Hazel’s dementia story: “Dementia took away my husband’s ability to speak; Music Makes Us! helped us reconnect”
Robert, 92, was diagnosed with vascular dementia with Lewy bodies in December 2018.
Category: COVID-19
Published: 12 July 2021
Stephen’s COVID-19 story: “It’s no exaggeration to say The Brain Charity was a life saver”
During the COVID-19 pandemic, The Brain Charity's weekly call was his only social interaction.
Category: COVID-19
Published: 30 June 2021
Ian’s COVID-19 story: “Without The Brain Charity’s lifeline, I wouldn’t have been able to put food on the table”
He didn't get a shielding letter despite having chronic peripheral neuropathy, so couldn't order food.
Category: COVID-19
Published: 15 March 2021
Gerard’s stroke story: “I was left with nothing, but The Brain Charity saved me from going under”
He was left in desperation, fearing his home would be repossessed.
Category: COVID-19
Published: 30 March 2021
Jane’s Leigh Syndrome story: “I felt abandoned – but The Brain Charity helped me make friends”
Adult Onset Leigh Syndrome is so rare it affects just one in 100,000 people.
Category: COVID-19
Published: 15 March 2021
Carmen’s Stiff Person Syndrome story: “I used to travel, but my one in a million condition left me unable to leave my home”
SPS causes muscle rigidity & spasms triggered by sudden noises, like a beeping pedestrian crossing.
Category: COVID-19
Published: 15 March 2021
Phillip’s COVID-19 story: “There is nowhere near enough humility in the world, but The Brain Charity showed me plenty”
Lockdown meant the barber had less than £5 a day to survive on.
Category: COVID-19
Published: 15 March 2021
